Archive for the 'United Kingdom' Category

N.I.C.E. Refuses Life Changing Drug to Cancer Patients!

January 11, 2007

The Velcade ThreeThere are a lot of fights going on right now, but there is one particular fight, a fight of three Yorkshire women against the establishment. Their cause? They are fighting for the right for cancer patients to live.

Jacky Pickles, Janice Wrigglesworth and Marie Morton are raising money to fight Nice or the National Institute for Health and Clinical Excellence. Look North, the division of the BBC news that delivers the news locally reported that these women saw a lawyer today and that they are now awaiting a February ruling.

These women who have all been diagnosed with cancer in the last 10 years are being treated by the drug Velcade. Velcade helps them reach a plateau in their illness and improve their quality of life. The health establishment says that the 9,000 GBP (per person) that it will cost to provide these and other women with this care is not cost effective for them. It is however more disturbing that more women could get this treatment if they lived in specific postcodes within the UK. Velcade is offered with no trouble in other postcodes, These three women are fighting to change that and are quickly becoming known as “The Velcade Three”

The women have been keeping a video diary for Look North in their day to day fight to survive. They are sapped of energy by their condition and still remain motivated to bring some light and justice to their situation. They certainly have succeeded as you can see that headlines all over the UK are blaring with their story.

If you would like to help the Velcade Three please visit their website at http://www.velcadethree.co.uk – On their website you will find more information about the women, their condition and how to make a donation to their cause. I urge everyone able reading this to donate something, anything to help stop this gross mis-carriage of justice. People have the right to survive no matter where they live in the UK!

Google Dictionary Defines “nice” as: decent: socially or conventionally correct; refined or virtuous; “from a decent family”; “a nice girl”

Nice is an unfortunate acronym for a company which seems to be anything but NICE!

How about it Microsoft, Google, Yahoo? Anyone? Can anyone help these people?

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Lights, Sirens, Action!

August 24, 2006

AmbulanceToday started out like any other, I got up, checked email…everything was fine. In the United States today many radio stations will be carrying a story about my music video release of “Rock and Roll Heaven.” I was quite excited to start the day and I came downstairs, greeted my mom and Max my dog…and then all hell broke loose!

With an Arrrrhhhhhhh!!! from my mom, everything started, and everything went to hell. She was in screaming agony. She sat down on the sofa and for the next half hour as I sat there, she was in pain, and then not and back to pain again. I was of course very worried because my mother has an extremely high threshold for pain, and does not usually actually scream in pain.

I called the local doctors surgery to see about getting her in. I explained that my mother was screaming in agony and she needed to see someone right now! The absolute incompetence of our local doctor’s surgery followed with orchestrated precision. They were unwilling and unable to change from the programmed response. They said that she would not be able to see a doctor until 4PM. By this time I was getting irritated and told them that was simply not good enough, she needed to see a doctor immediately, and would not be able to make it to the surgery under her own locomotion. As expected, I was placed on hold while “she checked” with the doctor on call. She came back and told me that she was unable to get us in before more than an hours time had passed. I told her that an hour was too long, and asked her for the phone number for our local Hospital, I did not think it necessary to call the emergency number. She gave me a number that was incorrect, outdated. With another scream from my mother I made the decision to call 999 and ask for an ambulance.

The ambulance arrived about 20 minutes later with two very pleasant paramedics/EMTs. They talked to her and determined after taking blood pressure and talking about medical history, that it was necessary to take her to the hospital Accident and Emergency Room. When we got there the usual waiting game started and she was finally seen by an emergency room doctor, about an hour later. He said it was nothing serious, and offered her a pain killer that contained Codine. My mother is violently allergic to Codiene, and when informed of this the doctor was unable to offer an alternative other than paracetemol, which is of course not a strong enough drug for agony. She arrived back in the waiting room less than 5 minutes after she had gone in and is still in similar pain now that we are home. I hope this clears up soon.

We had to get a taxi home which started another game when the Taxi driver told us that he had absolutely no idea how much it should cost, and that he thought it would be around 10 pounds, He radioed to his dispatch, and was unable to raise them without incredible interference on the channel. He had a mobile phone in the car and never once considered using it to call his dispatch. We told him we thought it would be around 5 pounds and I actually ended up calling the taxi agency and asking them myself! They informed me it was 4.50 and I told the driver. He was visibly irritated that he was unable to swindle us. So we got home for 4.50.

An incredibly stressful and non-productive morning.

You can never tell what life if going to throw you at you, can you? I will add that I plan to contact the doctor’s surgery and launch an official complaint. I am pleased with the diagnosis of “not serious” anything not serious means we can breathe a little easier, well I can, it still hurts for my mom to take a deep breath. I am hopeful that she will be better in the next couple of days, and I am grateful for the neighbours who have come and asked if I need anything and if my mom is alright. Knowing people care, really helps.